It’s been a hard week, work has been busy and I’ve been commuting a lot this week so I’m exhausted!
Mimi has been withdrawn, moody and hot headed for a few weeks with a lot worrying her. I can completely understand why the puzzle piece is used to represent autism because it’s a bloody puzzling head spin!
A couple of things have really got to me this week and I need to vent more then anything!
First off, Mimi has had a visual stress test this week and it’s been concluded that she needs coloured overlays for reading – not a problem (£20 per flimsy overlay but ok!) when it comes to writing or being out and about and lights affecting her senses it has been suggested that she has a machine test to formally diagnose irlens syndrome OR dyslexia, again not a problem
But it is a problem….
Can I find ANYWHERE to do this test?? NO!
The nearest place is 60 miles away (an hour each way for Mimi in the car – NOT okay) it’s £175 for the assessment, NOT okay – that’s more then a weeks worth of shopping Money and with so many outgoings it means I’m going to have to save hard for it!
Then, once Mimi has had the assessment she may need tinted glasses, ok simple right….
NO, Mimi has very strong prescription glasses and every time she has a new prescription (every 6 months for the past 4 years) we are going to need to pay another £50+ to have them tinted and that’s even if we find somewhere to get them done!
How is it this is not covered on the NHS??
Next bug of the week..
Mimi has been unable to complete work at school this week and been given it to bring home
NOT OKAY!!! Home is a time for Mimi to rest between school and our time as a family and Mimi goes to school – she is not homeschooled for a reason! Mimi has seen this as punishment, she gets extra homework whilst her friends can have a fun weekend! Her weekly homework causes many issues on a daily basis as it is!
If Mimi can’t concentrate in class then they need to address this and find out why, what adjustments can they put in place to help her? OR maybe just take a moment to ask her if she is ok….
Mimi wasn’t okay, later she told me that a friend of hers (so called best friend) had hurt her and got angry with her for having ‘easy’ work to complete and not the hard work she had, this upset Mimi – she told me so
BUT in Mimi’s words ‘it’s ok because she is my friend’ NO NO NO NO NO IT IS NOT OKAY!!’
It is never okay to hurt your friends!
Over the past few months this said ‘friend’ has made Mimi feel worthless on many occasions with little digs, put downs and psychically hurting her and it is not okay! Ever!
When trying to explain to Mimi that it is not okay and this child clearly isn’t a true friend Mimi has got very upset and jumped to her friends defence. She doesn’t see it and that worries me more than I can explain
Mimi can not grow up thinking it is ok for people to hurt her just because they say they are friends, I’m scared what this can lead to when she is older, really scared!
Not only has all the above been a nightmare this week, we’ve had the usual meltdowns, worries and despair with Mimi about everything from a cut in her mouth to the tiny little blonde hairs on her legs (BTW it’s not okay to have hairs on your legs and it’s definitely not okay to shave them.,, how are we going to get around this huh? Mimi is only 8 and we shouldn’t have this yet 😩) This beautiful little kind hearted girl has the weight of the world on her shoulders and I don’t know how to take it away from her, I really wish I did! I would give my last breath for my children, both of them and it pains me everyday to see Mimi so distraught over the things most people see as trivial.
It’s not all bad though, we have each other and that means everything will BE OKAY
I have finally finished reading the last book in my pile and nearly ready to blog my reviews so keep an eye out…